Blog

Here you’ll find relevant essays related to raising a child with unique and complex needs. The purpose of these posts is to form connections through our shared stories. Stories have the power to change the world when we feel less alone in our struggles and finally seen.

Without My Daughter

Without My Daughter

“I know just how you feel, I lost my cat a year ago.”  I tried to muster an appropriate response; the woman meant well.  But I was still raw after the death of my youngest child and tired...

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Thanksgiving

Thanksgiving

Today I am home with a sick child. My complex, disabled, and now ill child.  I started the day annoyed that I had to miss work.  I have only been back to work (barely part-time) a few...

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The Forever Caregiver

The Forever Caregiver

For months, I have been conflicted about whether or not to put these thoughts on a page. I know people will make a judgment about me based on a piece of writing.  And that terrifies me. Also, I know...

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Our Child As A Baby

Our Child As A Baby

I was advanced material age (38) when I was pregnant with Sully and a high risk of going into labor early which led to taking shots weekly. (Did this lead to autism?)  It was by far my hardest...

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The Help Isn’t Coming

The Help Isn’t Coming

There will be times on this journey where you scream, cry & use colorful language. That was today. To be a fly on our wall when I am on the phone. When the screaming comes to an end. When the...

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