Blog

Here you’ll find relevant essays related to raising a child with unique and complex needs. The purpose of these posts is to form connections through our shared stories. Stories have the power to change the world when we feel less alone in our struggles and finally seen.

Our Child As A Baby

Our Child As A Baby

I was advanced material age (38) when I was pregnant with Sully and a high risk of going into labor early which led to taking shots weekly. (Did this lead to autism?)  It was by far my hardest...

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The Help Isn’t Coming

The Help Isn’t Coming

There will be times on this journey where you scream, cry & use colorful language. That was today. To be a fly on our wall when I am on the phone. When the screaming comes to an end. When the...

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Standing Strong Yet Weary….

Standing Strong Yet Weary….

Cody is in a man’s body with the mind of a child. His body is growing faster than his mind and there are many challenges that come with that. Cody had a huge tantrum last night. Tantrum not meltdown...

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Enough Is Enough

Enough Is Enough

From the minute you become a parent, the overwhelming fear and concern sets in. You constantly question whether every choice or decision you make on your child’s behalf is the right one. When your...

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No One Answers Our Desperate Pleas for Help

No One Answers Our Desperate Pleas for Help

“Come back to me…” I whisper as I hold my 3-year-old daughter who is once again slipping into the unknown, an unknown that I have few tools to help her navigate because the treatment options we’ve...

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I Wish My Son Didn’t Have Autism

I Wish My Son Didn’t Have Autism

By: Eileen at The Autism Cafe Why is this even a taboo thing to say? The truth is I wish Charlie didn’t have autism. There, I said it. It’s not politically correct, but I know that many autistics,...

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Autism and Sleepless Nights on Vacation

Autism and Sleepless Nights on Vacation

After enduring a rough ending to the school year in 2020 due to the COVID pandemic, my family needed a summer getaway. My wife and I decided to treat ourselves to a resort near the Jersey Shore...

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When The Simple Isn’t So Simple

When The Simple Isn’t So Simple

It always starts out so simple. It seems hard to believe what will take place in the hour that you leave your house. My teen daughter had to be at a school event this morning. That means I would...

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