Caregiver Reflections Archive

Proving Them Wrong

Proving Them Wrong

Over the last year, I’ve heard my child described in ways that no parent wants to hear. It shook me to the core. It broke me. They said she is: out of control, aggressive, going to hurt someone,...

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Where Do We Go Now?

Where Do We Go Now?

Amidst the everyday challenges as of late, there is something looming ahead in the horizon. If you’re anything like me, then the fear of the unknown can be quite debilitating. As a fellow...

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Without My Daughter

Without My Daughter

“I know just how you feel, I lost my cat a year ago.”  I tried to muster an appropriate response; the woman meant well.  But I was still raw after the death of my youngest child and tired...

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Thanksgiving

Thanksgiving

Today I am home with a sick child. My complex, disabled, and now ill child.  I started the day annoyed that I had to miss work.  I have only been back to work (barely part-time) a few...

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The Forever Caregiver

The Forever Caregiver

For months, I have been conflicted about whether or not to put these thoughts on a page. I know people will make a judgment about me based on a piece of writing.  And that terrifies me. Also, I know...

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Our Child As A Baby

Our Child As A Baby

I was advanced material age (38) when I was pregnant with Sully and a high risk of going into labor early which led to taking shots weekly. (Did this lead to autism?)  It was by far my hardest...

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Standing Strong Yet Weary….

Standing Strong Yet Weary….

Cody is in a man’s body with the mind of a child. His body is growing faster than his mind and there are many challenges that come with that. Cody had a huge tantrum last night. Tantrum not meltdown...

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Enough Is Enough

Enough Is Enough

From the minute you become a parent, the overwhelming fear and concern sets in. You constantly question whether every choice or decision you make on your child’s behalf is the right one. When your...

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