Caregiver Reflections Archive

A Holy Shift

A Holy Shift

I descended the stairs, immediately irritated by what was awaiting me with each scream originating from my 15-year-old son. Great, I muttered as the uninvited stench rose to greet my nose. Luke, my...

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Holy Work

Holy Work

“This is holy work,” I begrudgingly reminded myself a day after returning home from a much needed vacation; a week of relaxation, sun, and reconnecting with my husband, and here I was now, again,...

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Manna for the Moment

Manna for the Moment

Luke has been back in school for about a week now. Experts claim that special needs caretakers often experience PTSD, and I particularly notice this tendency when I don’t have him on my radar for an...

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Luke’s Brain

Luke’s Brain

I often struggle to understand or explain Luke’s thought process to others. Luke, my 15 year old primarily non-verbal son with profound special needs. Friends, bystanders or even specialists will...

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MOM!  Don’t Bring Luke!

MOM! Don’t Bring Luke!

A few weeks ago, on a particularly warm summer day, Ryan and I announced to our crew – Kids! You’ve been so helpful lately and did your chores without complaining so we’re going to have a family fun...

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See Me Too – A Caregiver’s Plea

See Me Too – A Caregiver’s Plea

Dear mama with normal children, Normal? Typical? What’s politically correct you might wonder? As do I and – What is normal anyway? Honestly, I’m not sure because I’m tired. And I don’t spend my free...

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To The Medical Mama – I See You.

To The Medical Mama – I See You.

How many times have Ryan and I watched from a distance – mostly online – as a special needs family spent weeks or even months in the hospital with their child, and we said to each other – gosh,...

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A Glimpse – I Choose Hard

A Glimpse – I Choose Hard

“You and Ryan seem so calm” A phrase I often heard when Luke was in PICU for almost 4 weeks this past December and into January. We probably appeared calm because we’ve experienced the worst case...

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WHAT HAPPENS?

WHAT HAPPENS?

I spent an intense morning with Luke at the eye doctor. Honestly, we’ve been frequenting doctor’s offices most days. Yesterday was PT for Ryan, today, eye doctor for Luke, tomorrow PT for Ryan,...

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