Today I am home with a sick child. My complex, disabled, and now ill child. I started the day annoyed that I had to miss work. I have only been back to work (barely part-time) a few...
Thanksgiving
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caregivers Archive
Standing Strong Yet Weary….
Cody is in a man’s body with the mind of a child. His body is growing faster than his mind and there are many challenges that come with that. Cody had a huge tantrum last night. Tantrum not meltdown...
Enough Is Enough
From the minute you become a parent, the overwhelming fear and concern sets in. You constantly question whether every choice or decision you make on your child’s behalf is the right one. When your...
Here We Go Again: How One Family Works in Shifts to Achieve Minimal Sleep
“This photo is what we aim for — a happy, calm, contented Josh — the snapshot that we choose to share, but the everyday reality is far from this picture.” Here we go again, I say to myself, trying...
Insight on Autism
Written By: Amy Schlueter A couple months ago I wrote here about Alex and empathy. How it’s starting to emerge more. But it’s definitely a work in progress. Case in point…… Last week I had the...
I Feel Myself Slowly Deteriorating
As written by Melissa Gill from her blog page @My Journey With Jackson I honestly never realized how coping with Jackson’s extreme needs would affect me physically. I had read about the effects from...
Why You Should Care About Children With Special Needs
It can be difficult to understand the complexities of raising a special needs child if this calling is not part of your daily reality. I get it. I never gave these children nor their caretakers a...
To The Medical Mama – I See You.
How many times have Ryan and I watched from a distance – mostly online – as a special needs family spent weeks or even months in the hospital with their child, and we said to each other – gosh,...
Simple Ways to Support Special Needs Caregivers
Anger, guilt, anxiety, depression, stress and exhaustion. Pick a word – special needs caregivers experience it. Not seasonally nor occasionally but daily. I do often with 8 kids; one, my 15...
Caregiver Spotlight – Deanna’s Story
Thank you for your willingness to share your story for The Lucas Project blog! My objective is to raise awareness and shine a spotlight on caregivers and how difficult our role can be. We...