respite for special needs parents Archive

See Me Too – A Caregiver’s Plea

See Me Too – A Caregiver’s Plea

Dear mama with normal children, Normal? Typical? What’s politically correct you might wonder? As do I and – What is normal anyway? Honestly, I’m not sure because I’m tired. And I don’t spend my free...

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To The Medical Mama – I See You.

To The Medical Mama – I See You.

How many times have Ryan and I watched from a distance – mostly online – as a special needs family spent weeks or even months in the hospital with their child, and we said to each other – gosh,...

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A Glimpse – I Choose Hard

A Glimpse – I Choose Hard

“You and Ryan seem so calm” A phrase I often heard when Luke was in PICU for almost 4 weeks this past December and into January. We probably appeared calm because we’ve experienced the worst case...

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WHAT HAPPENS?

WHAT HAPPENS?

I spent an intense morning with Luke at the eye doctor. Honestly, we’ve been frequenting doctor’s offices most days. Yesterday was PT for Ryan, today, eye doctor for Luke, tomorrow PT for Ryan,...

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Caregiver Spotlight – Deanna’s Story

Caregiver Spotlight – Deanna’s Story

Thank you for your willingness to share your story for The Lucas Project blog! My objective is to raise awareness and shine a spotlight on caregivers and how difficult our role can be.  We...

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Caregiver Spotlight – Jess Ronne

Caregiver Spotlight – Jess Ronne

 I am so honored and amazed at how many of you offered to share your stories about special needs with the world. Thank you from the bottom of my heart.  The only way we see change and more...

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Change is Coming

Change is Coming

As many of you are aware, last January I began The Lucas Project out of a desperate need for resources in rural Tennessee where we live. Ryan and I were floundering, stressed, and a little manic...

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