special needs Archive

No One Answers Our Desperate Pleas for Help

No One Answers Our Desperate Pleas for Help

“Come back to me…” I whisper as I hold my 3-year-old daughter who is once again slipping into the unknown, an unknown that I have few tools to help her navigate because the treatment options we’ve...

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When He Prays

When He Prays

As written by Lindsay Criswell from her blog @Branch and Stone Studio My son cannot usually answer open ended questions. He may not look you in the eye. My son might come by your side, but then he...

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Don’t Tell Me

Don’t Tell Me

Don’t tell me It’s not severe When it’s my story To tell. Don’t tell me It’s not severe When I daily live A version of hell. Don’t tell me It’s not severe When all you got Is something to sell....

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A Holy Shift

A Holy Shift

I descended the stairs, immediately irritated by what was awaiting me with each scream originating from my 15-year-old son. Great, I muttered as the uninvited stench rose to greet my nose. Luke, my...

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Manna for the Moment

Manna for the Moment

Luke has been back in school for about a week now. Experts claim that special needs caretakers often experience PTSD, and I particularly notice this tendency when I don’t have him on my radar for an...

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MOM!  Don’t Bring Luke!

MOM! Don’t Bring Luke!

A few weeks ago, on a particularly warm summer day, Ryan and I announced to our crew – Kids! You’ve been so helpful lately and did your chores without complaining so we’re going to have a family fun...

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A Glimpse – I Choose Hard

A Glimpse – I Choose Hard

“You and Ryan seem so calm” A phrase I often heard when Luke was in PICU for almost 4 weeks this past December and into January. We probably appeared calm because we’ve experienced the worst case...

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Caregiver Spotlight – Deanna’s Story

Caregiver Spotlight – Deanna’s Story

Thank you for your willingness to share your story for The Lucas Project blog! My objective is to raise awareness and shine a spotlight on caregivers and how difficult our role can be.  We...

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