“Come back to me…” I whisper as I hold my 3-year-old daughter who is once again slipping into the unknown, an unknown that I have few tools to help her navigate because the treatment options we’ve...
As written by Lindsay Criswell from her blog @Branch and Stone Studio My son cannot usually answer open ended questions. He may not look you in the eye. My son might come by your side, but then he...
Don’t tell me It’s not severe When it’s my story To tell. Don’t tell me It’s not severe When I daily live A version of hell. Don’t tell me It’s not severe When all you got Is something to sell....
I descended the stairs, immediately irritated by what was awaiting me with each scream originating from my 15-year-old son. Great, I muttered as the uninvited stench rose to greet my nose. Luke, my...
Luke has been back in school for about a week now. Experts claim that special needs caretakers often experience PTSD, and I particularly notice this tendency when I don’t have him on my radar for an...
A few weeks ago, on a particularly warm summer day, Ryan and I announced to our crew – Kids! You’ve been so helpful lately and did your chores without complaining so we’re going to have a family fun...
“You and Ryan seem so calm” A phrase I often heard when Luke was in PICU for almost 4 weeks this past December and into January. We probably appeared calm because we’ve experienced the worst case...
Anger, guilt, anxiety, depression, stress and exhaustion. Pick a word – special needs caregivers experience it. Not seasonally nor occasionally but daily. I do often with 8 kids; one, my 15...
Thank you for your willingness to share your story for The Lucas Project blog! My objective is to raise awareness and shine a spotlight on caregivers and how difficult our role can be. We...
Thank you for your willingness to share your story for The Lucas Project blog! My objective in raising awareness is to shine a spotlight on caretakers and how difficult our role can be. We...
Thank you Kim for sharing your caretaker story! It’s all about awareness, folks. As people become aware of our stories, we will see change and resources become available. In the...
Thank you Ashlee for sharing your caretaker story! It's all about awareness, folks. As people become aware of our stories, we will see change and resources become available. In the...