“This photo is what we aim for — a happy, calm, contented Josh — the snapshot that we choose to share, but the everyday reality is far from this picture.” Here we go again, I say to myself, trying...
Blog
Here you’ll find relevant essays related to raising a child with unique and complex needs. The purpose of these posts is to form connections through our shared stories. Stories have the power to change the world when we feel less alone in our struggles and finally seen.
When The Simple Isn’t So Simple
It always starts out so simple. It seems hard to believe what will take place in the hour that you leave your house. My teen daughter had to be at a school event this morning. That means I would...
Somehow Surviving on 5 Hours of Sleep: The Life of an Autism Mom
By Julie Fackrell I’ve recently pondered my sleep habits as a mom to my 28-year-old son Jacob who has autism. I’ve considered how I manage to function on approximately 3-6 hours of sleep daily which...
Chasing Sleep
Written By: Sherica Scherer Autism is typically accompanied by other comorbidities suck as anxiety, ADHD, sleep disorders, epilepsy, and gastrointestinal issues to name a few. Elijah was a decent...
Insight on Autism
Written By: Amy Schlueter A couple months ago I wrote here about Alex and empathy. How it’s starting to emerge more. But it’s definitely a work in progress. Case in point…… Last week I had the...
#KickedOut: When Severe Autism Makes You Too Disabled for Disability Programs
By: Deborah Lane I am a mom to a 31-year-old son B who has autism and intellectual disabilities. He has my entire heart and keeps me entertained with his ridiculous sense of humor and repetition of...
#KickedOut: When Severe Autism Kicks Your Son Out of School
By: Melissa Cossette My son Ryder was an early entrant to preschool at the age of 3 which was recommended by his clinician just after he was diagnosed with severe level 3 Autism, Global...
The Difficulty of Getting Care as a Caregiver
Caregivers sometimes deal with significant health issues. A few years ago, I started dealing with some health issues. As a mom of four young boys, two who have special needs, I went to the doctor to...
High School Is Over, But Leaving The Nest Is Not An Option For My Daughter at This Time
As written by Linda Pollack Orleans The season I've been preparing for the past several years is here. This is the season my autistic daughter’s peers settle into their new college life or embark on...
We Are Here
As written by Katie Emde from her blog @A Journey for Avery We will always fight for you. The days you are crying, the days you scream all day & when the meltdowns are never ending. We will...
Strength Not Weakness
As written by Kim Mcisaac from her blog @Autism Adventures with Alyssa Mental health struggles are real and can be dark. You can lose your ability to cope and even to care. It can push you to the...
When He Prays
As written by Lindsay Criswell from her blog @Branch and Stone Studio My son cannot usually answer open ended questions. He may not look you in the eye. My son might come by your side, but then he...