Blog

Here you’ll find relevant essays related to raising a child with unique and complex needs. The purpose of these posts is to form connections through our shared stories. Stories have the power to change the world when we feel less alone in our struggles and finally seen.

The Importance of Partnership

The Importance of Partnership

As written by Amanda DeLuca from her blog @Jackson's Journey, Jackson's Voice Lessons I’ve learned about marriage while raising a special needs child. We’ve spent so much of our time and marriage...

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Try Harder

Try Harder

As written by Paige Carter from her blog @OakforAutism "Can't you try harder?" These words were said to me by a nurse last Wednesday whilst trying to get my son to take a disgusting sedative...

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Maybe One Day

Maybe One Day

As written by Margaret Hay from her blog @A&Me I am sometimes seen as rude. Uninterested. Detached. Maybe it is because when I bump into you when out, I often just say "hi" and then rush off...

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When Losing Hope isn’t an Option

When Losing Hope isn’t an Option

The following guest blog post was written by Michelle Kiger of My Redhead Warriors The last thing I ever want to do is lose hope. When our life gets really hard I try to think of our past. Look back...

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Don’t Tell Me

Don’t Tell Me

Don’t tell me It’s not severe When it’s my story To tell. Don’t tell me It’s not severe When I daily live A version of hell. Don’t tell me It’s not severe When all you got Is something to sell....

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A Holy Shift

A Holy Shift

I descended the stairs, immediately irritated by what was awaiting me with each scream originating from my 15-year-old son. Great, I muttered as the uninvited stench rose to greet my nose. Luke, my...

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Holy Work

Holy Work

“This is holy work,” I begrudgingly reminded myself a day after returning home from a much needed vacation; a week of relaxation, sun, and reconnecting with my husband, and here I was now, again,...

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Manna for the Moment

Manna for the Moment

Luke has been back in school for about a week now. Experts claim that special needs caretakers often experience PTSD, and I particularly notice this tendency when I don’t have him on my radar for an...

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Luke’s Brain

Luke’s Brain

I often struggle to understand or explain Luke’s thought process to others. Luke, my 15 year old primarily non-verbal son with profound special needs. Friends, bystanders or even specialists will...

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MOM!  Don’t Bring Luke!

MOM! Don’t Bring Luke!

A few weeks ago, on a particularly warm summer day, Ryan and I announced to our crew – Kids! You’ve been so helpful lately and did your chores without complaining so we’re going to have a family fun...

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